We’re just two weeks away from the big day. How did it creep up on us so fast again, right? But you know what? I’m ready for it this...

Today is Rett Syndrome Awareness Day, but I'm exhausted. For me... EVERY day is Rett Syndrome Awareness Day. And it never gets easier.

What are your greatest strengths? How about your weaknesses? Often we only think of these questions when we’re preparing for an...

It is devastating for me to realize that in June five years will have passed since my twins were born. As I mentioned in previous blogs,...

Every Tuesday is speech language therapy day around here. If you've been following my families journey, you should know that Ethan has...

Last night Lisa and I watched "Magnolia's Hope", an intimate documentary about a little girl with Rett Syndrome much like Madison. A lot...

I've seen this day approaching now for a couple of months. Today, January 15th is our D-Day for Madison. D-Day is the diagnosis day for...

For the first year of her life, Madison progressed normally, albeit slightly slower than her younger twin brother Ethan. But we thought...

Madison was born on June 1, 2016 (five weeks early) and was first known as “Twin A”. Two minutes later, her twin brother was born. Both...

October is Rett Syndrome Awareness month so in support of that, Madison will be taking over my social media accounts and blog for the...