Dec 11, 20216 min readA Christmas Gift Guide for That Special Girl With Rett Syndrome We’re just two weeks away from the big day. How did it creep up on us so fast again, right? But you know what? I’m ready for it this...
Oct 29, 20215 min read29 Days of Purple... and I'm Exhausted!Today is Rett Syndrome Awareness Day, but I'm exhausted. For me... EVERY day is Rett Syndrome Awareness Day. And it never gets easier.
Dec 2, 20202 min readMagnolia’s HopeLast night Lisa and I watched "Magnolia's Hope", an intimate documentary about a little girl with Rett Syndrome much like Madison. A lot...