Oct 29, 20215 min read29 Days of Purple... and I'm Exhausted!Today is Rett Syndrome Awareness Day, but I'm exhausted. For me... EVERY day is Rett Syndrome Awareness Day. And it never gets easier.
Dec 2, 20202 min readMagnolia’s HopeLast night Lisa and I watched "Magnolia's Hope", an intimate documentary about a little girl with Rett Syndrome much like Madison. A lot...